More Alike Than Different

There are so many good things happening for people with special needs this summer! The National Down Syndrome Congress held its convention in Florida at Disney World. There's a great "We're More Alike Than Different" campaign happening, full of stories of how people with special needs are impressing the world around them. I loved the photo of Anthony Shriver (nephew of John F. Kennedy) lifting up a competing swimmer at Camp Shriver in Boston to congratulate him in winning.~~~Our son, Jeff would have loved all this activity. He began attending Special Olympics Events when he was little. Their Oath said, "Let me win. But if I cannot win, let me be brave in the attempt." Here is an excerpt from "Journey With Jeff; Inspiration for Caregivers of People with Special Needs," titled, "Courage! Sharing! Joy!"~~~"Good morning, God!" The chaplain, Jeff's dad, asked God's blessing on the day as the bright, warming May sky welcomed the Special Olympic games. Our excitement for Jeff and the other participants was brimming over. Jeff's teachers plus several of the families of his classmates were eager to cheer on every athlete's endeavor to succeed. Special Olympics began for Jeff in the spring of 1970 in Dunkirk, when he was almost 9 years old. I am eternally thankful to Eunice Kennedy Shriver, who started a day camp with her husband, Sargent, in their backyard in the early 1960s. This day camp for individuals included her sister Rose, who was developmentally disabled with mental retardation, and it launched the way for Special Olympics in the United States and around the world. Our opening parade in the city of Jamestown began forming with the mayor and our state senator at the head. A Sousa march burst forth from the loudspeaker, accompanying the athletes around the track, and their excited waves fired our applause. Then the sight that continues to thrill me every time I see it -- a runner lighting the Olympic torch. Let the games begin! The cheers from parents, teachers, aides and clasmates were deafening! At the end of the event each athlete received a special hug, among much cheering and applause. People in charge made sure all players were rewarded. In the 1970s everyone received a ribbon, even if it was simply for taking part. Now it was Jeff's turn for the softball throw. "You go, Jeff!" He earned a red ribbon -- second prize! "Yay! That's great, Jeff! Come get your hug!" (My prayer at the end of that day was, "Hallelujah! What a day! All that courage and sharing and joy! You enjoyed it, too, didn't You, Jesus?"

Review #11 on Amazon.com From Long-time Friend

Two differently abled boys grew up together,...one with scoliosis and one with Down syndrome. Jeff's friend wrote about "Journey With Jeff" in the Amazon.com review: "This is an inspirational story about a family that I knew when I was growing up in New York state. Jeff was a friend of mine and was full of love and joy. He was one of the most happy people I have ever met even though he was born with severe challenges. This book chronicles my friend's life, his parents' struggles and joys, and the family's incredibly strong faith as they journeyed with Jeff through his special life. The book is written specifically for inspiration for caregivers of people with special needs, but the story is inspirational for all people. This is one of those books that you keep after you've finished reading and turn to it when life throws you a curve."~~~I was delighted to discover this eleventh review on the Amazon.com page! I invite everyone who has read "Journey With Jeff" to write a review to help others know this encouragement. Thank you!!

"Journey With Jeff" on Google Alert

About seven blogs ago I wrote of Michelle, who had lost four babies by miscarriage. When she was expecting again, tests showed the possibility of having a child with Down syndrome. The doctor asked if she wanted to abort, and she said, "No way!" Her son is a fine, flourishing four-year-old today. The tests were wrong! ~~~Here is another story, quite the opposite. Patricia Bauer writes in her blog about an Oregon couple who seeks $14 million in a "wrongful birth" lawsuit. This is to cover the cost of raising their 2-year-old daughter born with Down syndrome, providing education, medical care, and speech and physical therapy. Deborah and Ariel Levy said they would have gotten an abortion if they had known their daughter would have the condition. They said they were given incorrect information , and their lives were changed because of it. There were many responses to this article: Keri says, "Some people expect their children (and other people's children) to be born perfect and to stay that way." The NWDSA is concerned with the tyranny of perfection at the heart of this. Two readers say," Just think what this is saying to their two older children..."We love you both so much (just like we love your little sister) but if you had a birth defect (or maybe if you develop a problem) we'd wish that you'd never been born." Chris says, "Since the Levy's don't want their burdensome daughter, I'll take her!" Keri continues, "I get such joy from my daughter, and I couldn't imagine her any other way. She's an amazing individual and I know that she will go far in life. Anyone who doesn't think so needs to get out of her way!" I love that last statement! What enthusiasm and encouragement! It's an acceptance of their daughter, and her incredible potential to be all that God created her to be!

Jeff's "I love you!"

Joy! Pure joy! That is what I sensed in Michelle as she told me about her youngest child. After she had miscarried four babies, and was pregnant once more, tests showed that there was a possibility of the baby having Down Syndrome. "Do you want to abort?" the doctor asked her. "No! No way!" she said, "I've waited a long time for this baby!" She carried her son full term, and when he was born, he was fine. He is four years old today, and being a very "normal" child. "What if I had aborted?" she reflected. "This beautiful son of mine would never have been born!"~~~I read that 90% of pregnancies which predict a child with Down Syndrome are aborted! 90%! Many families who want to adopt a child with special needs find there are not many available. Please spread the word that if a mother-to-be cannot handle the possibility of a baby with difficulties, she should deliver this precious child, and offer it for adoption! So many people will be blessed!

Differently Abled

Jeff loved to be busy, to be helping people. And, the people around him found jobs for him to do, enjoying the wide smiles he gave so generously. I was very thankful for the wisdom, support, and encouragement of those wonderful persons! Today I learned of another
mother whose 43 year-old differently abled daughter is living in an LAI Assisted Living apartment, going to a work program, and eager to help plan lots of activities for her group. This mother says, "I enjoyed reading Journey With Jeff. It reminded me of the difficult times I went through with my daughter, and made me feel successful for having met those challenges! The book gave me some ideas of what's available. It inspired me." I am inspired by remarks such as this mother's, as I watch the ripple effect of Jeff's story.