Showing posts with label developmental disabilities. Show all posts
Showing posts with label developmental disabilities. Show all posts

Wednesday, January 7, 2009

BIG BIRD's CAR!!

Remember Lance from the Lifetime Assistance Inc. staff whom Jeff nicknamed "Big Bird"? Jeff loved to do things with and for Lance, and was delighted one summer day to help him by washing his car. (Read this story on www.luther95.com/UNYSWE-ANY/--Click on Resources,
and scroll down to "Journey With Jeff.") This is my totally favorite story in the entire book, and whenever I am asked to be a speaker, I always share this one. It draws a ton of laughter!!~~~Today, I met Lance in the wintery LAI parking lot, and he offered his arm to walk me to my car. Royalty! I felt like Royalty! "About 450 copies of "Journey With Jeff" have been sold or gifted so far," I informed him. "I'm so honored to be in that book!" Lance said. "So many people have come up to me and asked if I was Big Bird. One person asked me to sign 'Big Bird' in their copy!"~~~I love it when I meet Lance somewhere-- it doesn't happen often. I remember the friendship he and Jeff had and I'm warmed all over again! (Photo is of Jeff at his residence where he washed "Big Bird's Car.")

Friday, December 12, 2008

Life at Jeff's Fullest Potential

Brenda is one of the Lifetime Assistance Inc. workers at Main Street, Brockport who bought a copy of "Journey With Jeff" earlier this year. Brenda recommends: "Journey With Jeff deserves a 5 Star Rating. This book has a message for all. Sybil's story about Jeff showed me his life, through her 'eyes and heart.' I saw and felt her challenges and pain. I wondered how she found the courage to keep going. Her determination to keep going even at times when she questioned the 'why of it all' is inspiring. She could have adopted that 'pity me attitude.' She did not. She took each day and found the true meaning of the little things that make up the life of a child. In Jeff's story, there is a message for all. The message is of Jeff's determination to live his life to his fullest potential and his Mother's courage to make sure that was possible. Sybil is an inspiration."~~~Thank you, Brenda!!

Friday, September 26, 2008

How do you read "Journey With Jeff"?

Hello again! My schedule was much too full a couple of weeks ago, and consequently my back stressed into spasms which lasted longer than usual. My doctor found that my asthma was aggravating things, slowing the healing down. I knew my doctor had picked up "Journey With Jeff" when a friend from church took it to a doctor's meeting and he proclaimed that he should have it first because he knew the author best! I asked if he had finished reading it, and he explained he's reading it a little at a time. My pastor is using the book as a devotional, reading it a day at a time. A couple of friends have said they read it through in one day, not wanting to put it down. How are you reading "Journey"? Have you written a review on Amazon.com yet to recommend that others read Jeff's story?~~~ This excerpt follows the previous blog's excerpt. It is titled, "Struck Numb." ~ "My God, my God, why have you forsaken me? Why are you so far from helping me, from the words of my groaning?" Psalm 22:1 ~ Eighteen-month-old Jeff was happy anywhere he went. He loved to smile at people and to give them hugs. I knew he wouldn't mind seeing another doctor, but I was on edge outside the unfamiliar office and impatient to know what this doctor would tell us about the persistently noisy breathing. ~ The nurse opened the door and called our name. Jeff grabbed my fingers and two of Bob's, lifted himself up, and led the way into the office. The nurse smiled, and I returned her smile, hoping it foretold good news. ~ Healthy ivy and spider plants hung from the windows and there was a palm tree in the corner of the room. I wondered, Did I water mine at home? The faint smell of rubbing alcohol, the tall cabinet of instruments, and the examining table in the middle of the room rudely reminded me of where we were. But I liked the Mozart that was playing, glad it wasn't popular or show tunes because when I had something important to do, classical music always helped me concentrate. ~ The tall, slim, forty-ish looking specialist appeared and spoke to Jeff and to us. He was quiet and friendly, and took his time checking Jeff's history, watching him pull himself around the office mostly in a sitting position. "Okay, Cowboy!" he finally said, "Are you ready to get up here and let me check you out?" ~ With a big smile, Jeff allowed himself to be lifted up onto the examination table. While he checked Jeff's active body and I held my breath, the specialist asked unhurried, studied questions about that noisy breathing. I began to relax and to feel optimistic. ~ Then he asked about the age at which Jeff had raised his head, sat up, stood up, and started walking. "Jeff took his first steps along about four weeks ago," I told the doctor with a proud grin. "He loves walking around our house, pulling us by our fingers, trying to race with our bouncing dog." ~ "Seventeen months old when he started to walk..." said the doctor slowly. "Did you ever think, Mr. and Mrs. Reisch...did you ever think that Jeff might be retarded?" ~ Suddenly I couldn't breathe. The room seemed very hot. Retarded? Our baby? Impossible! Slow maybe, but nothing to be worried about. The doctor's voice, describing various signs of retardation, darted in and out of my thoughts, shooting down bright hopes and dreams for Jeff one by one, exploding them out of existance. ~ I wanted to scream at the doctor, "No! You are wrong!" Instead, I gathered our papers and our coats mechanically, cold shivers running down my back. I needed desperately to get away from that office. Bob's arm steered us steadily to the car. Holding Jeff close in my arms all the way home, I rocked him and crooned insensibly, "Bye baby bunting, Daddy's gone a-hunting." ~ My voice cracked, but I kept on crooning. Numbly, staring into space, with tears running down my face, I repeatedly told myself, "When Jeff wakes up he will be our normal child again. Please, God." How do I pray, Lord? How do I pray? (Photo is Jeff at 2 years.)
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Friday, September 12, 2008

Is Lifetime Assistaance Inc. one of the best kept secrets around?~~WARM 101.3 Radio Interview


So many things are going on for so many people at Lifetime Assistance, Inc.!! It all started back in 1978 as a small organization to provide services to a couple of dozen people in Western Monroe County -- where we live. Now, LAI offers services to 1800 people with developmental disabilities in 50 locations in 3 counties. Their seasoned employees work in residences, day programs, and the LAICO organizations which provide volunteer services to more than 50 Rochester agencies. Some of these employees have been with LAI for 25 years -- and counting! Only 17% leave a year, which means a great deal to the clients who have come to trust their advocates . We so appreciated these caring people who expect respect, digity, inclusion and self-advocacy for the clients, that "Journey With Jeff" is dedicated to LAI: "This book is dedicated to the wise, wonderful and winning people at Lifetime Assistance Inc., where Jeff spent his adult life. We cannot say enough good about them." While Jeff was living at his LAI residences I was a member of the Board of Directors. After he died, I volunteered to be Informed Consent Chairperson for the clients at LAI who have no family to advocate for them. On September 26th, LAI will celebrate its 30th Anniversary! I've been with them -- and they with us -- almost all the way! HAPPY ANNIVERSARY, LIFETIME ASSISTANCE, INC.!!