Showing posts with label Power of words. Show all posts
Showing posts with label Power of words. Show all posts

Wednesday, March 10, 2010

Respect for an Inherent Dignity


At a Lutheran Book Club discussion of "Journey With Jeff," one of the members experienced an "aHa Moment." She wrote, "Your book has made me more accepting of everyone just as God made them!" A new respect for the inborn dignity of all God's children was born! What an accomplishment, AND what a blessing this will be for everyone! She also said she "liked my format and found it easy to read -- each chapter a lesson in itself." She thanked me for putting my feelings "out there where hopefully we can all learn from them."~~~The presiding pastor added, "The discussion went really well. We talked about the style of writing, which we appreciated, especially the letters to God. We could picture Jeff, his struggles, the seizures and surprises, and talked at length about the time period that Jeff was alive. It was a great conversation that flowed well, and I encouraged everyone to send you an e-mail, or a letter, or to friend you on Face Book."~~~YES!~~~What a joy to know that eight Lutheran Book Club members joined together to read and discuss the story of our joys and challenges, and how God has blessed us and so many people through Jeff!

Thursday, December 25, 2008

Merry Christmas to My Readers!!

One day I visited our Brockport Library to check out the number of times their copy of "Journey With Jeff" had been borrowed, and found 8 due dates listed! Yay!!!! Maybe someday soon I shall be able to check out the six other town libraries where "Journey" lives?~~~The day before Christmas I received an e-mail from a mother who wrote: " I recently borrowed your book from the library, and I have started reading it. I am finding it fascinating and very uplifting, and I can relate because years ago we found out our daughter was profoundly deaf. As I read your book, I keep thinking of other people I would like to recommend it to. I tried to purchase it today at Borders but they said it was out of print. Is there a way to still order it?" Immediately, and with great joy I e-mailed her back: "If you live in Brockport you can buy "Journey With Jeff" at Liftbridge Book Store, or Salvation Station. If you live in Greece, you can order it from Barnes & Noble. You can also order it from Amazon.com, or, I can send you a copy. The cost in the stores, and at Amazon.com is $17.95. Covering shipping and handling, I can send an autographed copy to you for $20.00~~Whatever's best for you and for the other people to whom you'd like to recommend it." And of course, I invited her to take a look at my blog at this website. (Photo is the author with the CD of "Journey With Jeff,"which entered the Brockport Library about a year before the book edition.)

Friday, September 26, 2008

How do you read "Journey With Jeff"?

Hello again! My schedule was much too full a couple of weeks ago, and consequently my back stressed into spasms which lasted longer than usual. My doctor found that my asthma was aggravating things, slowing the healing down. I knew my doctor had picked up "Journey With Jeff" when a friend from church took it to a doctor's meeting and he proclaimed that he should have it first because he knew the author best! I asked if he had finished reading it, and he explained he's reading it a little at a time. My pastor is using the book as a devotional, reading it a day at a time. A couple of friends have said they read it through in one day, not wanting to put it down. How are you reading "Journey"? Have you written a review on Amazon.com yet to recommend that others read Jeff's story?~~~ This excerpt follows the previous blog's excerpt. It is titled, "Struck Numb." ~ "My God, my God, why have you forsaken me? Why are you so far from helping me, from the words of my groaning?" Psalm 22:1 ~ Eighteen-month-old Jeff was happy anywhere he went. He loved to smile at people and to give them hugs. I knew he wouldn't mind seeing another doctor, but I was on edge outside the unfamiliar office and impatient to know what this doctor would tell us about the persistently noisy breathing. ~ The nurse opened the door and called our name. Jeff grabbed my fingers and two of Bob's, lifted himself up, and led the way into the office. The nurse smiled, and I returned her smile, hoping it foretold good news. ~ Healthy ivy and spider plants hung from the windows and there was a palm tree in the corner of the room. I wondered, Did I water mine at home? The faint smell of rubbing alcohol, the tall cabinet of instruments, and the examining table in the middle of the room rudely reminded me of where we were. But I liked the Mozart that was playing, glad it wasn't popular or show tunes because when I had something important to do, classical music always helped me concentrate. ~ The tall, slim, forty-ish looking specialist appeared and spoke to Jeff and to us. He was quiet and friendly, and took his time checking Jeff's history, watching him pull himself around the office mostly in a sitting position. "Okay, Cowboy!" he finally said, "Are you ready to get up here and let me check you out?" ~ With a big smile, Jeff allowed himself to be lifted up onto the examination table. While he checked Jeff's active body and I held my breath, the specialist asked unhurried, studied questions about that noisy breathing. I began to relax and to feel optimistic. ~ Then he asked about the age at which Jeff had raised his head, sat up, stood up, and started walking. "Jeff took his first steps along about four weeks ago," I told the doctor with a proud grin. "He loves walking around our house, pulling us by our fingers, trying to race with our bouncing dog." ~ "Seventeen months old when he started to walk..." said the doctor slowly. "Did you ever think, Mr. and Mrs. Reisch...did you ever think that Jeff might be retarded?" ~ Suddenly I couldn't breathe. The room seemed very hot. Retarded? Our baby? Impossible! Slow maybe, but nothing to be worried about. The doctor's voice, describing various signs of retardation, darted in and out of my thoughts, shooting down bright hopes and dreams for Jeff one by one, exploding them out of existance. ~ I wanted to scream at the doctor, "No! You are wrong!" Instead, I gathered our papers and our coats mechanically, cold shivers running down my back. I needed desperately to get away from that office. Bob's arm steered us steadily to the car. Holding Jeff close in my arms all the way home, I rocked him and crooned insensibly, "Bye baby bunting, Daddy's gone a-hunting." ~ My voice cracked, but I kept on crooning. Numbly, staring into space, with tears running down my face, I repeatedly told myself, "When Jeff wakes up he will be our normal child again. Please, God." How do I pray, Lord? How do I pray? (Photo is Jeff at 2 years.)
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Thursday, September 4, 2008

Palin’s Promise Heard 'Round the World - 13WHAM.com




REISCH'S BOOK ABOUT HER STRUGGLES WITH SPECIAL NEEDS CHILD

(St. Paul, Minn. /Rochester, N.Y.) –Sarah Palin promised in her convention speech to help families of children with special needs.

For many parents raising children with special needs, a woman running for vice president, bringing their cause to the political forefront—was a first.

“To have that advocacy for our children would be wonderful,” Sybil Reisch said. Her son had Down syndrome. She said back then in the '60s and '70s, there wasn't much support available.

Last October she published a book about her struggles to help others. She hopes Palin also can show caregivers of children with special needs they are not alone, whether in Alaska or Washington, DC.

“If she did go to Washington we'd know that someone would be there to raise awareness and keep legislation going,”
Reisch said.

But not everyone is convinced of Palin's commitment.

Sherry Battisti has a son with autism. She's also a nurse for special-needs kids and says Palin will have to reach beyond talk--and focus on what's really needed, like meal assistance and equipment. That's pretty easy for most kids to get...it's all the other equipment that's harder for them to get."

In April, Palin gave birth to a boy with Down syndrome. Both Reisch and Battisti say Palin's promise to special needs families probably won't sway their votes, though they acknowledge it might for some others.

Thursday, August 21, 2008

Conditional Love and Encouragement?

 
"You look so familiar!" I said to a woman at our Senior Center; "What's your name?" She told me, and we studied each other for a moment before we both said the other's name at the same time! Big hug! I hadn't seen her for many years, but I remember something I don't think she remembers. 25 -- 30 years ago when we often met for lunch I'd talk about my intense dream of writing Jeff's story for publication. After a while, when this work didn't fall into place, and I STILL longed for it, she impatiently said, "Sybil, I don't want to hear from you again until you've written that book!!!" ~~~ I believe she was challenging me to "Just DO it!"~~~ she believed this goading would motivate me to get it done!!~~~ Catching up a little with each other's lives today, I mentioned that I have written "Journey With Jeff." She responded lightly, "I knew you would."~~~ Maya Angelou has said, "I have learned that people will forget what you said; people will forget what you did, but people will never forget how you made then feel." I pray I will never bury a relationship with treatening words of conditional love.
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Thursday, August 14, 2008

The New "R" Word


In spite of the media spin saying the new movie, "Tropic Thunder" is a movie-within-a-movie making fun of self-absorbed actors, it begins with "Once upon a time there was a retard..." The actor who has played, "Simple Jack - a dim-witted farmer" in a movie is criticized by another action hero for playing him with every typical understanding (misunderstanding) of people with developmental disabilities. "You never go full retard!" he shouts. The National Down Syndrome Congress is concerned that this new movie will result in bullying of children with special needs. One of the most unfortunate consequences of the movies is the distribution of merchandise displaying offensive lines like, "Never go full retarded" on clothing and other items. Tim Shriver, chairman of the Special Olympics said, "I'd like people not to see it. I'd like kids with special needs going back to school in the fall to not have to deal with other kids saying, "Are you a full retard?" Those who use the label to describe someone do not know the power of their words, or the level of their own ignorance. ~~~It's all about Respect -- an "R" word I can live with.